I had anticipated doing a lot more blogging than I have done here but what can I say, the days are long and exhausting! Since my last post lengthening has continued to get harder and harder for Madi. We have been able to maintain 0-90 degrees range of motion in her knee but that has meant lots of pain for Madi. She now has so much anxiety about therapy and home therapy that she has been getting sick before her knee bends. She frequently cries all throughout her hour of office therapy even when we are just doing fun things like playing soccer or throwing a ball. All she can think of are the knee bends that are coming. We are trying Valium before therapies but so far it doesn't seem to be helping. Its so hard to see her feeling like this. I keep reminding her how close we are to stopping the turns and telling her that it will get easier when we do stop.
I don't mean to make it sound like Madi is miserable 24 hours a day. She is not. She really is doing so well! When we aren't doing therapies she is a happy little girl. She does get tired easier but who wouldn't carrying around a huge weight on their leg all the time. She had her spirits lifted last week when we surprised her with a visit from Daddy!! We had lots of fun and even got permission to take a day off from office therapy so we could have a whole day with Dad! Now we are just counting the days until our next xrays on the 23rd and hoping that we will get the good news that we can go home!!
 |
| 42mm |
 |
| 69mm |
 |
| 56mm |
 |
| This is Amazing!! |
Right now we should be near 77mm of bone lengthened. We keep turning until our appointment on the 23rd which should put us over 80mm of new bone gained!! We are so close and they predicted that if she maintains her range of motion that we will probably be released to go home!! We are so ready! Its so incredible to see how much different her leg looks. She is so amazing! I am so proud of her! Thank you all for your prayers and keep them coming! We are so close and we can't wait to get home and see all of our friends and family and show them her new leg!! I will post again after our next appointment.
 |
| Loving some time at the ocean! |
 |
| Her awesome gift from a fellow pffd friend. The dog has a shorter right leg too! |
